All the genes fit to print
George Church, Harvard geneticist, has launched the Personal Genome Project (PGP). He's planning to build a database that includes not only individual genetic maps but also medical histories and other information about each participant so that scientists can create test cases in personalized medicine. They also hope these test cases will give insurance and government more insight into the situations that will come up. Learn more at Wikipedia and Technology Review.
From Wikipedia: Personal Genome Project
Of the first ten, these nine have given permission to release their names:
- Misha Angrist, Duke Institute for Genome Sciences and Policy
- Keith Batchelder, Genomic Healthcare Strategies
- George Church, Harvard
- Esther Dyson, EDventure Holdings
- Rosalynn Gill-Garrison, Sciona
- John Halamka, Harvard Medical School
- Stan Lapidus, Helicos BioSciences
- Kirk Maxey, Cayman Chemical
- James Sherley, formerly with Massachusetts Institute of Technology
WSJ: Full Disclosure. 2007-Jul-25, by Esther Dyson
I believe that the broader spread of this kind of medical and personal information is inevitable. For most people, this kind of information won't be easily accessible on the Internet to strangers, but it will be discoverable by employers, insurers, law enforcement and probably by anyone with the inclination and resources to hunt for it aggressively. Greater knowledge implies greater responsibility, in so many spheres. It's fine not to take actions when you don't know the consequences, but when you do know the consequences, both action and inaction are a decision.
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